Living with Esophageal Cancer November 2024 Update 3

Another batch of procedures, another post. The main event this week was a probe being sent down my wife’s throat to check out her esophagus. The opening at the top of her esophagus is now a whopping 5 millimeters in diameter. The doctor was able to dilate the opening slightly, but this measurement is much smaller than last time when it was able to dilate to 20 mm (2 cm). As a result, he had to use a pediatric sized camera to see what was going on in there. The active tissue on the PET scan appears to be an ulcer at the bottom of the esophagus. No tissue was biopsied in this exam. That is good news; however, it sounded to me like the pediatric scope was not really capable of doing any tissue samples if they were needed. We will have a follow-up exam in about 3 weeks—assuming scheduling allows for this since it’s right in the middle of the holidays.

Also, this week a cyst was removed from her back. This is likely not a big deal, but it did appear during the early phases of chemo and radiation. Pathology is likely a week away.

My wife is capable of about two hours of activity a day before crashing. This is enough to put on a good show at the grocery store or church. Overall, her energy level is low. She is down to 155 pounds. This is the least amount she has weighed since beginning college. She is getting more calories but most of them are “junk calories” like pie filling and cheesecake. After some trial and error, she is now comfortable eating cold things like ice cream. Her daily calory goal is up to 1,400 per day, but like I said it’s quantity not quality nutrition.

Living with Esophageal Cancer November 2024 Update 1

In addition to everything else, my wife is now taking blood thinners. About a month ago, she had another scan. It showed that her tumors had reduced in size, but also that she had two pulmonary embolisms (blood clots in her lungs).

The PET/CT scan will be in about two weeks. This is the final verdict on the effectiveness of radiation and chemotherapy treatments. This is the benchmark of the best she will be or her “new normal.” The day following the scan, we will meet with the oncologist.

Thus far she is still on an essentially liquid diet. The exceptions are these: she can eat some cream-based soups and her oatmeal breakfast if she runs them through the food processor and liquifies the heck out of them first. The only somewhat solid food she can eat is slices of apple. She chews the apple slices and can swallow some of it. The rest she spits out onto a napkin and then tosses in the trash. Due to the lingering effects of chemo, she still can’t eat anything cold, so ice cream is not an option at this time. Also, anything with spices or tomatoes (including soups) are not something she can eat.

All her medicines are crushed into powder and mixed with liquids, or she can’t take them. Nasea is her constant companion, and she can’t sleep well at night. Amazingly, she has only lost 35 pounds since July. She has trouble walking and we now have handicapped placards in both cars. She needs either my help or that of a shopping cart to walk more than a few feet.

She has an amazingly positive attitude, but it is horrible to watch her suffer.

I plan to update again after the next scan.