Well, the big PET scan and meeting with the oncologist finally happened. It was somewhat of a letdown. The cancer, of course, looks to be still present (or the damaged tissue from it) but the tumors have shrunk. Her ability to breathe is improved but eating anything solid at this point is just not possible. As previously stated, the tumors are inoperable. When meeting with the doctor, he made a matter of fact comment that the radiation/chemotherapy only had about a twenty-five percent chance to be effective.
It got even better. It turns out that the PET scan can’t check to see if the blood clots in my wife’s lungs are still there. As things stand now, there are no plans to ever check to see if they have gone. They are just going to keep her on blood thinners.
She is slated to have a throat scan later in the month. For this procedure, they put her under (sedated) and then will put a camera down her throat. If anything looks worthwhile, then it will be biopsied. Her remaining esophagus was lit up on the PET scan and the report said her SUV (standardized uptake value) reading was at 9.5. This is indicative of moderate cancer activity and a short prognosis of life expectancy.
Based on the throat scan results, a monitoring schedule will be established. Once again when this was being discussed palliative care was mentioned. The doctor also mentioned that further chemo or immunotherapy might be in her future.
My wife has lost about 40 pounds from the current bout with cancer. Lately, she has upped her calorie intake to about 1,000 per day. Food is still via a spoon or straw. The sensitivity to cold still persists even after about a month of being off chemo drugs so all food must be room temperature or warmer. It seems like the opening of her esophagus is still small, but the pain and discomfort of swallowing food has decreased. At her last throat scan, it was reported that the maximum that the esophagus would open was 2 cm.
We are both looking forward to having all the kids here for Christmas. We know there is a good chance that this may be the last time we spend the holidays together.
I enjoy helping my wife deal with her illness, but I really hate to see her suffering. She always has a smile on her face and a positive attitude. Some time next year, I expect to start hearing about hospice care. I hope that day is far off. More updates as things develop.